World Hypopara Awareness Day
A global day of awareness for those living with hypoparathyroidism — a rare disease affecting fewer than 200,000 people worldwide. Together, we raise our voices. Together, we are a movement.
Hypopara Life · Awareness Walk 2026
We may not walk far, but we walk together. Join us on June 1st as we unite the hypopara community in a virtual awareness walk — every step counts.
Join the Hypopara Life Awareness Walk 2026
Walk in person in Fort Lauderdale, FL — or virtually from anywhere in the world. Every step counts. Registration is free and open to all.
Registration is free. In-person walk: Fort Lauderdale, FL · Virtual walk: anywhere in the world.
Take Action This June 1st
This walk raises awareness for hypoparathyroidism and supports the mission of Tralyte Health, a patient‑centered medtech startup developing an at‑home calcium monitor. Tralyte is a for‑profit company and cannot accept charitable donations. Supporters may choose to invest in Tralyte through its WeFunder campaign.
Support Hypopara Life
Help Bari continue advocating, speaking, and creating resources for patients who feel alone on this journey.
Support the CauseInvest in a Calcium Monitor
Tralyte Health is developing a portable calcium monitoring device for hypopara patients. Help bring real‑time monitoring to patients by investing through their WeFunder campaign.
Minimum investment: $100
Invest on WeFunderTralyte is a startup — investments support engineering, testing & clinical readiness.
What is Hypoparathyroidism?
Hypoparathyroidism (hypopara) is a rare endocrine condition where the parathyroid glands produce insufficient parathyroid hormone (PTH). This leads to dangerously low calcium and high phosphorus levels in the blood, causing debilitating symptoms that affect every aspect of daily life.
Symptoms include severe muscle cramps, tingling and numbness, extreme fatigue, brain fog, seizures, cardiac complications, kidney damage, and much more. Many patients describe living with hypopara as an invisible illness — you look fine on the outside while battling a storm on the inside.
World Hypopara Awareness Day on June 1st is our chance to shine a light on this condition, educate the public, support patients and caregivers, and push for better treatments and understanding.
How You Can Get Involved
The Numbers Behind Hypoparathyroidism
Hypoparathyroidism is one of the rarest endocrine disorders. Understanding the scale of this disease helps drive awareness, research funding, and better care.
People diagnosed in the US
Qualifies as a rare disease
Cases caused by neck surgery
Parathyroid glands removed or damaged
Average time to diagnosis
Many go undiagnosed for years
FDA rare disease designation
Only recently recognized as rare
Lifelong Treatment
Most patients require calcium supplements and active vitamin D every day for life. Conventional therapy does not replace the missing hormone.
Invisible Illness
Brain fog, fatigue, anxiety, and muscle cramps are common — yet hypopara is rarely visible to others, making it deeply isolating.
New Hope: Yorvipath
In 2024–2025, Yorvipath (palopegteriparatide) became the first PTH replacement therapy approved for adults with hypopara, offering a new path forward.
Sources: NORD (National Organization for Rare Disorders), FDA Rare Disease Designation Registry, Bilezikian et al. (2022), The Hypoparathyroidism Association.
Spread the Word
Help us reach more patients and families. Share World Hypopara Awareness Day with your community!
This is a Movement
Anything is possible. You are not alone. Together we can change the future for everyone living with hypoparathyroidism.