Community Testimonials

"Reading about Bari's experience as Patient #1 in the clinical trial inspired me to never give up on finding better treatment options. Her courage is contagious."

"Bari's columns have been a lifeline for me. Knowing someone else understands what I go through daily makes all the difference in the world."

"The calcium calculator on this website is something I use every week. It's so simple and helpful. Thank you, Bari, for creating these tools for us."

"Bari's advocacy work has brought so much visibility to hypoparathyroidism. She is a true warrior and an inspiration to all of us living with this condition."

"The Bridge Battery is exactly what the research community needs. Real patient data from real daily experiences. Bari is bridging the gap between patients and researchers."

"I found Bari's website when I was first diagnosed and feeling completely alone. Her story gave me hope that I could live a full life with hypopara."

"Bari's nutrition guide helped me understand which foods support my calcium levels. The information is clear, practical, and easy to follow."

"As a speaker, Bari brings both expertise and heart. Her presentations are informative, moving, and always leave the audience feeling empowered."

"Bari, thank you for writing this article, I can completely relate. I recently had a very low calcium result while 6 months pregnant and was completely beside myself while waiting for my next test result. It took me back to years earlier, when I was in my endocrinologist's office getting an EKG after a low calcium result just days before my college graduation. I too can't wait for the day when at-home calcium monitoring is available, what a miracle that will be for all with hypo-para! Thank you again for writing this article - I am with you!"

"As I read this I had the feeling that I wrote it…. As I have had the same experiences.. undiagnosed hypercalcemia, 3 parathyroids removed, one left barely functioning, tetany so serious after surgery I ended up in ICU, then vestibular issues from the tetany episode, next Mayo, vestibular PT, calcium stable for a few years, then back surgery now Calcium level 6…. Thankfully I have an excellent endocrinologist…. Living with Para"

"It is inspiring to read your posts. I hope you can find a way to raise your Ca. I miss all my friends like you that I met at the conference. Stay on the horse."