Resources

Trusted organizations, financial assistance, treatment information, and support for the hypoparathyroidism community. You are not alone.

Patient Organizations

NORD — Hypoparathyroidism

National Organization for Rare Disorders — comprehensive disease information, patient resources, and research updates.

Rare Patient Voice

Share your voice in paid research surveys and help advance rare disease understanding. Your experience matters.

News & Columns

BioNews

BioNews — rare disease news, research, and patient stories across hundreds of conditions. Bari's publisher and home of the Brave Butterfly column.

HypoParathyroidism News

The leading news source for the hypopara community. Latest research, patient stories, and treatment updates.

Brave Butterfly Column by Bari

Bari's column on HypoParathyroidism News — honest storytelling about living with hypopara. New columns published regularly.

Life Before & After a Calcium Crash

Bari's powerful column about the calcium crash that changed everything. A must-read for patients and caregivers.

Financial Assistance

The Assistance Fund (TAF)

Financial assistance for hypoparathyroidism patients — help with copays, insurance premiums, and medical costs.

NeedyMeds

Database of patient assistance programs, discount drug cards, and resources for affording medications.

Treatment & Research

Yorvipath (Palopegteriparatide)

FDA-approved PTH replacement therapy for hypoparathyroidism. Once-daily injection delivering continuous PTH over 24 hours.

ClinicalTrials.gov — Hypoparathyroidism

Search active clinical trials for hypoparathyroidism. New treatments and research studies are always opening.

Tralyte Health — At-Home Calcium Monitor

Developing a portable, at-home calcium monitoring device — 'a glucose monitor, but for calcium.' Based on VCU research by Dr. Xuewei Wang. Clinical testing planned for 2027.

Legal Resources

Kelley Kronenberg

Nationally recognized law firm — legal resources and advocacy for patients dealing with medical and insurance issues.

Holistic & Complementary Health

Lake Pointe Wellness Center

Dr. Drew Vapnek, DC — Chiropractic care and holistic healthcare in Acworth, Georgia.

Evolve Delray

Holistic health and wellness — functional medicine, mind-body-spirit approach to chronic conditions.

International Community Support

Hypoparathyroidism New Zealand

New Zealand's hypoparathyroidism support group — connecting patients, sharing resources, and advocating for the hypopara community across Aotearoa.

Parathyroid UK

UK-based support organization for parathyroid and hypoparathyroidism patients — information, support groups, and advocacy.

Hypoparathyroidism France

French hypoparathyroidism support organization — resources, community support, and advocacy for French-speaking patients.

Hypoparathyroidism Germany

German hypoparathyroidism support organization — resources, patient information, and community support for German-speaking patients.

Hypoparathyroidism Norway

Norwegian hypoparathyroidism support organization — resources, patient support, and community for Norwegian-speaking patients.

Connect with Bari

Follow the movement on social media and stay connected with the hypopara community.

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Know a Resource We Should Add?

If you know of an organization, program, or resource that could help the hypopara community, please let us know.

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Disclaimer: The resources listed on this page are provided for informational purposes only and do not constitute medical advice, legal advice, or endorsement. Always consult your physician or qualified healthcare provider before making any changes to your treatment. Bari Gordon Vapnek does not receive any commission or compensation from any organization listed. Inclusion on this page does not imply endorsement of all content or services provided by these organizations.