Milestones & Announcements
Key milestones, published stories, interviews, and media appearances sharing insights on hypoparathyroidism, advocacy, and the power of resilience.
First Annual Hypopara Life Awareness Walk
Fort Lauderdale, FL — June 1, 2026
A landmark moment in hypopara advocacy — the first-ever Hypopara Life Awareness Walk, organized by Bari Vapnek in Fort Lauderdale, FL on World Hypopara Awareness Day, June 1, 2026. This community walk brings together patients, caregivers, and supporters to raise awareness for hypoparathyroidism and show the world that anything is possible. Register at RunSignUp.
Brave Butterfly: A Hypoparathyroidism Journey
Hypoparathyroidism News
Bari's ongoing column series sharing insights, experiences, and hope for the hypopara community.
Patient Helpline — All Articles by Bari
Patient Helpline
Collection of all Bari's published articles on Patient Helpline.
World HypoPARA Day Panel Speaker
Facebook Live
Bari speaks on a panel for World Hypoparathyroidism Awareness Day.
Camurus and Gubra Enter Collaboration to Develop Long-Acting Treatment for Hypoparathyroidism
Camurus
Camurus and Gubra announce a collaboration and license agreement to develop a long-acting treatment for hypoparathyroidism — a significant step forward for the hypopara community. Published 2025.
Early Trial Tests Safety of Potential Treatment for Hypoparathyroidism
Hypoparathyroidism News
An early-stage clinical trial examines the safety and potential of a new treatment approach for hypoparathyroidism, offering hope for improved disease management.
Waiting for Calcium Test Results Fills Me With Anxiety
Hypoparathyroidism News
Bari's latest column exploring the anxiety and emotional weight of waiting for calcium test results — a deeply relatable experience for the hypopara community. Published 2026.
At-Home Calcium Testing Device Could Have Wide-Ranging Impact in Health Care
VCU News — Virginia Commonwealth University
VCU chemistry professor Xuewei Wang has created a portable, fingerstick-based at-home calcium monitoring device for hypopara patients — described as 'a glucose monitor, but for calcium.' Tralyte Health is commercializing the technology. Published March 3, 2026.
Endings and the Beginning of a Life of Advocacy
Patients Rising
Bari's powerful story of turning obstacles into opportunities — from creating a journal, to the 2019 Hypopara Conference in Denver, to becoming Patient #1 in the TransCon PTH clinical trial at Columbia University. Published January 16, 2020. (Link currently unavailable on publisher's end)
Hypoparathyroidism: Rare Disease Nearly Kills a Woman
Patients Rising
Bari's first article with Patients Rising, published on World Hypopara Day — sharing the reality of living with this rare disease. (Link currently unavailable on publisher's end)