Hear Bari Speak
As a public speaker and advocate, I share my journey with hypoparathyroidism at conferences, support groups, and media appearances worldwide.
Watch Bari
Bari's Advocacy Journey
Watch Bari share her story of living with hypoparathyroidism, from diagnosis to becoming Patient #1 in the TransCon PTH clinical trial, and her ongoing advocacy for the hypopara community.
Speaking Engagements
Ascendis Pharma Patient Listening Session
Patient listening session where Bari shares her experience with hypoparathyroidism and treatment journey with TransCon PTH (Yorvipath).
World HypoPARA Day Panel
Panel discussion on living with hypoparathyroidism, treatment advances, and patient advocacy.
Watch VideoFDA Patient Advocacy
Bari speaks to the FDA about the patient experience with hypoparathyroidism and the urgent need for better treatments.
Watch VideoPatient Advocacy Summit
Speaking about the patient experience, clinical trial participation, and the importance of advocacy.
Endocrinology Conference Presentations
Sharing the patient perspective at medical conferences to help healthcare providers understand daily life with hypopara.
Support Group Presentations
Regular presentations to hypoparathyroidism support groups, sharing resources and encouragement.
Podcast & Media Appearances
Interviews and discussions about hypoparathyroidism awareness, treatment options, and patient empowerment.
Topics Bari Speaks About
Living with Hypoparathyroidism
The daily reality of managing a rare endocrine condition — calcium crashes, brain fog, muscle spasms, and finding strength.
Patient #1: Clinical Trial Journey
Being the first patient in the TransCon PTH (Yorvipath) clinical trial and what it means for the future of treatment.
Patient Advocacy & Empowerment
How to be your own best advocate, navigate the healthcare system, and make your voice heard.
Caregiver Support & Family Impact
How hypoparathyroidism affects the whole family and what caregivers need to know.
Rare Disease Awareness
Raising visibility for rare diseases and the importance of research funding and community support.
Nutrition & Wellness with Hypopara
Practical tips for managing calcium, magnesium, vitamin D, and overall wellness.
Invite Bari to Speak
Interested in having Bari speak at your event, conference, or support group? Bari is available for in-person and virtual presentations.
Contact via the Ask Bari page or through social media.