Faces of Hypopara
This is a space for the hypoparathyroidism community to share their good days and bad ones. Upload a photo of your face so others can see what a good day or a bad day really looks like. You are not alone. Every face tells a story of courage, resilience, and hope.
Good Days
Celebrate the wins! Share when your calcium is stable, when you have energy, when you accomplished something despite the challenges. Your good days inspire others.
Bad Days
It's okay to not be okay. Share the struggles, the crashes, the brain fog. Your honesty helps others feel less alone in this journey.
Community Faces
Treatment: Yorvipath
This was an amazing day! It was my first solo trip since being diagnosed with hypoparathyroidism in 2019. I hadn't been able to even consider leaving my house for a few hours, much less travel by plane, until I started Yorvipath in 2025. I decided to take myself to Joshua Tree, California, and it was a deeply spiritual and transformative experience. Through my hypoparathyroidism healing journey, I've learned that my thoughts create my reality, so I go to great lengths to maintain a positive and hopeful mindset, navigating each day with intention. On this day, I took several short walks around Joshua Tree, did some sightseeing and shopping, and was able to socialize for short periods. Although I ran out of spoons early and often, I have never been so grateful. I look forward to many more days like this because I'm worth it.
Happiness is finally having a World Hypopara Awareness Day Global Event. Thank you. It's a good day for the entire hypopara community.
Treatment: Yorvipath
I'm having daily bladder pain. I have had what is being called a UTI for a year but no bacteria. Number prescriptions of antibiotics, yes more meds but they are doing nothing because it's not bacteria. I personally think I have interstial cystitis from build up of calcium on bladder from when I was taking multiple calcium pills and calcitriol. I can't wait to find out even though I dread cystoscopy.
Treatment: Natpara
I love the Grinch he just appeared 😁🤣. I love working and taking care of my parents it just makes me feel better.
Treatment: Conventional this was October 2026
I was playing piano at my Grandma DuRands funeral. I had bad seizure a couple days before. During while I was playing piano. When I had my first visit at NIh a year later. Dr. Karen Winer found out I was severely deficient in Vit d3(oh25), 1,125 hydroxy as well. Once they straighten me out. I only had one seizure after that. My family had no clue how bad I was the day of my Grandma DuRands. Thanks to Dr. Karen Winer for accepting me into her study! I think I even had a seizure during playing to! Bridget Born with HypoPARA
Treatment: standard of care
my 40th bday
Treatment: Standard of care
It's a good day when you can overcome HP symptoms and enjoy hobbies!
Treatment: yorvipath and SOC
Rare Disease Day 2025 hospitalized with a calcium crash.
Treatment: yorvipath and SOC
Ice skating in Central Park after my last Shine visit with Dr. Rubin, Feb 13, 2026. My calcium this day was at 7.0. (I found out after that skate!)
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Treatment: Yorvipath
Three months on Yorvipath and I finally had a day where I forgot I had hypopara. That's never happened in 10 years.
Treatment: Standard of Care
Had a calcium crash at work today. My coworkers don't understand why I suddenly can't think straight. Grateful for this community.
Went hiking with my family this weekend! Something I couldn't imagine doing two years ago. Small victories matter.
The brain fog has been relentless this week. Reading Bari's columns reminds me I'm not alone in this fight.
Treatment: Yorvipath
My corrected calcium was 9.2 today! First time in the normal range in months. Tears of joy.
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