Bari's Blog
Honest stories, real experiences, and the unfiltered truth about living with hypoparathyroidism. Because you are not alone on this journey.
"I write because I have to. Because if even one person reads my story and feels less alone, then every painful word was worth it. This blog is my heart on a page — raw, real, and unapologetically honest."
— Bari
Why I Jumped Out of a Plane with Hypoparathyroidism
They said I couldn't. They said it was too risky. But living with hypopara has taught me one thing — if you wait for the 'perfect' day, you'll never live. So I jumped. And it was the most freeing moment of my life.
The Day My Calcium Crashed and Everything Changed
One moment I was fine. The next, my body was shutting down. A life-altering calcium crash sent me to the ER and changed the trajectory of my advocacy forever. This is that story.
Read Full ColumnFrom Patient #1 to FDA Approval: The Yorvipath Story
Being the first patient in the TransCon PTH clinical trial was terrifying and exhilarating. Years later, watching Yorvipath receive FDA approval was one of the proudest moments of my life. Here's what that journey looked like from the inside.
What Brain Fog Really Feels Like
It's not just 'being forgetful.' Brain fog with hypopara is like trying to think through a wall of cotton. Words disappear mid-sentence. You forget why you walked into a room. You read the same paragraph five times. Here's what I wish people understood.
A Letter to My Children: Why Mommy Fights
Drew and Harrison — you are my reason. Every column I write, every speech I give, every day I push through the pain — it's for you. And for every parent with hypopara who wants to be there for their kids.
Athletes and Hypopara: We Are All Warriors
I draw parallels between professional athletes and hypopara patients. We both fight through pain, push past limits, and never give up. Every good day is a win. Every setback is a setup for a comeback.
The Invisible Illness: Why Nobody Believes You're Sick
You look fine. You don't look sick. Have you tried yoga? The comments never stop. Living with an invisible illness means constantly proving that your pain is real. Here's how I handle it — and how you can too.
Finding My Voice: How Writing Saved My Life
When I started writing for HypoParathyroidism News, I had no idea it would become my lifeline. Putting my story into words helped me process the pain, connect with others, and find purpose in the struggle.
Read My Published Columns
My official column "Brave Butterfly" is published on HypoParathyroidism News. Read all my published columns there.
Disclaimer: The content on this blog reflects personal experiences and opinions and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always consult your physician or qualified healthcare provider with any questions regarding your medical condition.